Saturday, September 28, 2013

Storage and disposal

Figuring out how to store and dispose of all the diabetes "stuff" is a big challenge. Most type 1 parents seem to build up a stash of supplies in case of emergencies, and I've been working on that for a while. 

Insulin was taking over our fridge. There was no room in the butter compartment for 4 boxes of insulin pens, so they are in the meat/cheese drawer. As the supply grew, the room for meat and cheese shrunk. So....when we got some handy little organizers from Sanofi, I moved the "stash" insulin to the extra fridge.  The system is still a work in progress. 

We also have lots of plastic storage carts in our house. All over the place. The system on the left is all manner of snacks and low supplies. I need another cart to stack on top. Notice the latches...the dog figured out how to open the drawers and was having a snacking good time while we were at school. Top right is Dexcom supplies (for Eddie and Little Steve). Bottom right is glucagon, chargers, test strips, pen needles,  etc. We have a pretty good supply of all those right now. We'll need another cart if anyone decides to start pumping.

I was curious just how much trash we generated each week just for diabetes.  Turns out, it's about a gallon.  That's a gallon jar stuffed about as tight as I can get it.  They didn't throw away very many boxes that week either, just one pen needle box and maybe a test strip box. That's a lot of trash!

This is the daily supply center. It used to be a wine rack, now it holds all the daily use supplies....meters, pen needles, lancets, insulin pens, log books, etc. To the right are our fancy sharps containers,  and the food scale.   

Finally, the D bags. These are the mobile supply centers that go everywhere. They contain meters, insulin pens, pen needles, snacks, low supplies, and glucagon. Both guys chose a backpack with a great pocket in the front. It's not an actual diabetes bag, but a tech-friendly backpack. They like it because they only have to keep up with one bag. 

So there ya go. Everything you ever wanted to know about how we store diabetes supplies. 

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Saturday, September 7, 2013

Making Lemonade

I am a glass half-full/silver lining/making lemonade kind of girl. It has been incredibly hard for me to find the positives since Seth's diagnosis.  The DOC (diabetes online community) is an incredible positive. Someone is always there to answer questions,  give support,  or just listen. I participate in the DOC in several ways: blogging (reading and writing), Twitter,  a couple of Facebook groups, and my favorite The support, advice, information, etc has been vital to my survival this past year but I still struggle to make lemonade out of the stupid diabetes lemons.

Grasping at straws, I know, but here's a little bit of lemonade: Seth has had a positive impact on 3, yes 3, adult type 1 men.

1) I've written about Jason's diagnosis before here and here. The information I learned after Seth's diagnosis quite possibly saved his life.

2) Seth has a friend whose dad is type 1. He was diagnosed around 12, I'm thinking. He has never really taken great care of his diabetes, much to his wife's dismay. In fact, he has been using pretty much the same insulin regimen for much of the last 30 years. After Seth's diagnosis,  he updated his diabetes management,  moving to more modern insulin theray. AND, he recently started pumping.  He feels better, and I know how happy his wife must be. His son has told me several times how happy he is to see his dad taking better care of himself.

3) Jason has a friend that was diagnosed with type 1 in college.  He was one of the first people to visit Seth in the hospital. I don't know him well, but that meant so much to me. By his own admission,  he is a bad diabetic.  He doesn't test often, only when he feels bad. He knows his blood sugar numbers are high most of the time, but hasn't really worked to change it. After I posted on Facebook about Jason and Seth getting their Dexcom G4 systems, this friend called Jason to ask him about it, ordered it the next day, and started using it a couple of days ago. He wants to improve his management!

I hate type 1 diabetes every day, but seeing some positive things happening helps me deal with it just a little bit better. I cling to the hope that every day is one day closer to a cure!

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Thursday, September 5, 2013

They have names!

The guys have named their new Dexcom systems.

Seth named his Eddie. He likes it when Eddie matches the meter. 

Jason named his Little Steve. He also likes it when Little Steve matches the meter.

Sometimes Little Steve and Eddie match each other. We all think that's cool.

So far, with the exception of the first 24 hours of a new sensor, we are all in love with Eddie and Little Steve. They are already helping us manage the beast that is type 1 diabetes.

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Sunday, September 1, 2013

Meet the Cyborgs

We have 2 new members of the family. They haven't earned their names yet, but I'm sure they will very soon.

They were delivered on Tuesday.

Seth was super excited!
Jason was a little unsure.
Different colors so we can keep them straight.
This is the sensor with the inserter. Looks kinda wicked.
Jason's sensor/transmitter. 
Seth did his own insertion.  He is a rock star!!!

First 24 hour graphs. J on top, S on bottom.
The 2nd day. Jason fixed his breakfast spike!
After 5 days with the Dexcom G4 systems, I can say life is already better. I can't honestly say I'm sleeping more, but I'm sleeping better. When I wake up at night, I check both receivers then go right back to sleep if we have steady arrows. Friday night, both of them rode just above the low line all night.  Before Dex, I'd have woken them up for snacks. Since I could see they were holding steady, I was able to sleep. 

Life with type 1 diabetes is hard, but Dexcom makes it just a little bit more manageable.  

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