Friday, December 14, 2012
Jason has struggled for several years to control his type 2 diabetes. Despite eating pretty well, exercising, following doctor's orders about medications, and even the type 2 last resort of Lantus (long lasting insulin), his A1c values continued to be too high. Comments about losing weight, eating better, exercising more, just getting it under control were not helpful. They often came from well meaning people, but the pressure it creates is not helpful. At. All.
After Seth was diagnosed with type 1, I began researching to learn all I could to help him. I stumbled across some new numbers. Type 3 diabetes is a nonmedical term used to describe caregivers of diabetics; that's me! I never dreamed I would have a diabetes number, but now I do. Then I saw type 1.5 diabetes. As I read more, I began to think it described Jason....diabetics that might be slightly overweight but having poor control. It's basically slow onset type 1 that is often misdiagnosed as type 2, the best I can understand. The ADA doesn't distinguish it from type 1. I encouraged Jason to discuss it with his doctor at his next appointment. That appointment was today. The doctor agreed that he was misdiagnosed, and changed his diagnosis to type 1.5, also known as LADA (latent autoimmune diabetes in adults). Previous treatment plan scrapped completely, as it was a completely inappropriate treatment plan for a type 1. No wonder control has been unattainable! New plan is in place, and I am hopeful it will work fabulously. We are a family determined to KDA.
On a positive note, Seth's endo appointment was today also. A1c was 7.3. This was the first A1c that included a full 3 months of treatment. I was thrilled! I continue to be so proud of his attitude and proactive approach to living with type 1 diabetes. The only thing that worries me is his unawareness of lows. He was 58 in the endo's office, but didn't realize he was low until she asked how he felt. It was then he realized his hands were shaking. Type 1 peeps/parents -will he likely learn to recognize it?