Saturday, March 18, 2017

First diaversary #3

Today is my 1st diaversary. Even though I knew 12 days earlier that I had t1d, today was the day a doctor confirmed it. This is the third time our family has experienced the first year diaversary.

During the past year, I've still lived a full life. Here's a summary of my activities since this time last year.

Organized d supplies for 3. This has been a challenge! Diabetes supplies take up a ton of space. 

Watched my nephew compete in state DI competition. 

Said goodbye to our last grandparent. We lost Jason's grandma last April. She was the last grandparent between us.

Dad threw surprise birthday party for me and mom. Our birthdays are 1 week apart. My parents are the best! (That's my sweet friend in the pic, not my mom.)

Swim team had their annual swim banquet.

I went to Chicago on a school trip to check out a program with a team of teachers and administrators. Flew for the first time with d, and the first time in quite a few years.

We attended Type One Nation summit, where I met several people I had only known online.

Got used to diet DP. This was a biggie. I wasn't sure I'd be able to adjust, but the thought of drinking water only for the rest of my life was a terrible prospect. 

Ran concession stand at the pool all summer, with the help of our boys. This us our vacation money. 

Helped with summer swim camp.

Created d supply organizers for our bags.

Started playing Pokémon Go.

Met close friend's kiddo at hospital after he was in a car accident. I could get there faster than my friend, as they were flying the kiddo there by helicopter. 

Helped with a benefit volleyball tournament for a sweet friend with cervical cancer.

Got all of our prescriptions synced on a 90 day refill cycle.

Increased my coaching role for the school swim team.

Started year 22 of teaching.

Celebrated Seth's 4th diaversary.

Endless shrimp with the bestie....a tradition.

Met Laura Wilkinson at a coaching clinic.

Celebrated Jason's 4th diaversary.

Went on Christmas cruise with Jason and the boys. I'm still working on a separate post for that. 

Served on 3 committees at school.

Helped coach our girls and boys swim teams to district championships. 

Celebrated 26th anniversary at regional swim meet, with our annual tradition of DQ after the meet.

Girls weekend....annual tradition with childhood friends.

Multiple vehicles woes. At one point during the year, we had one working vehicle for 4 adults trying to get to work/school in 3 different directions. Thankfully, friends and family helped us get where we needed to be!

Life continued. Nothing around me changed. I had to figure out how to fit diabetes management into my life, not life into diabetes. The first year is behind me. It only gets better from here on out! KDA

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Wednesday, January 11, 2017

Prescription refills made easy?

Our pharmacy is about to make my head spin off my body. It's the pharmacy our insurance requires us to use.  Up until now, we haven't had any problems with them. I have all 16 of our prescriptions on the same refill cycle, and I refill them all at the same time. I can even pick the day that is most convenient for me. One trip to the pharmacy every 90 days. The app tells me when they are eligible for refill, and the pharmacy will contact the doctor for renewal when prescriptions expire. Sounds great, right? It was until this cycle. 

Last week, before I was able to order refills, I got a text that my prescription was ready. Um, I didn't order it yet, but ok. One was at the wrong pharmacy. Hmmmm, the mystery increases. Not a huge problem, though. It's the store closer to our house. We usually use the one closer to work, but I can (hopefully) work that out later. I ordered the rest of the refills on the app, then checked the next day to make sure they had gotten renewals of expired prescriptions from the doctors. Check.

Yesterday, I was finally able to pick up the one I didn't order. I asked how that might have happened, not mad just confused, but they had no idea. Then I remembered one of the prescriptions said it was on hold. I've never had that happen before. They weren't sure about that either, and suggested I call the other store to find out.

I called the store where we normally fill everything this morning. They really couldn't explain why that one prescription was on hold. The only suggestion was that maybe the doctor sent the prescription before insurance would allow the refill. I'm pretty sure the app won't let me order early, but I didn't feel like arguing. I ordered it, and got a text this afternoon that it's ready to pick up. So, we're just waiting on one more that says 'in process.' Hopefully it will be ready tomorrow, and hopefully this whole thing will go more smoothly in 90 days. This is exhausting! 

This is our typical 90-day order. 

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Sunday, September 4, 2016

Death of a sensor

The topic of sensor life comes up fairly often in various diabetes-related Facebook groups. One question that comes up is how do you know when a sensor is done? Well, today I have no doubt my sensor is completely done. It was fine this morning...only 4 points off from my fingerstick. Within an hour or so, it was telling me I was 53⬇but I knew that wasn't right. I had just eaten breakfast. Fingerstick showed I was 157, which sounds about right considering what I had for breakfast, time, etc. I gave it a little time to straighten up, but after 4 hours it was still wonky (alternating between ??? and far off numbers) so I pulled it. It gave me 3 weeks of great readings and an abrupt ending. Can't complain too much about that! Here's hoping the new one is just as good.

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Saturday, August 27, 2016

4 years

Wednesday was Seth's 4 year diaversary. I asked him on Tuesday night what he wanted to do. Pause. "Oh yeah, I forgot that was tomorrow." It has become such a part of who he is that he doesn't even think about it anymore. That makes me happy and sad. Acceptance is a good thing. That we must accept it is the hard part.  Me? I will never forget that day. It still makes me emotional to think about, even though life is good.

On Wednesday night, we went out to dinner as a family to our favorite local Italian place. We ate bread and pasta with abandon. We talked about all kinds of things, except diabetes. 4 years ago, it consumed us. Now, it's still there but mostly in the background. How can that be, with 3 of us now diagnosed? I don't know, but that's how it is. A blip, a nuisance,  but not front and center.

On Friday, we celebrated with our dear friend Rachel, who met us at the emergency room that morning, and went with us to Children's. This time, we indulged in Mexican food followed by Sweet Frog. Again, our conversations really didn't include diabetes, which thrilled  me. We talked about school and Pokémon Go, and various other things. We again just celebrated life.

4 years of KDA. In a few months, we will celebrate life again with Jason's 4 year diaversary. Some people choose not to recognize the day at all, we choose to celebrate life and how far we've come, both individually and as a family. Is there really anything better than that?

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Wednesday, July 13, 2016

If I'm talking, I'm fine. Right?

So this happened at lunch today.

This morning we had swim practice. I am helping Jason coach a summer technique class, which has been awesome. Jason had to work until noon at the pool, so I just hung out waiting. We actually decided ahead of time what we wanted for lunch, so we injected our insulin ahead of time to minimize the blood sugar spike (called a prebolus). But then a parent wanted to talk to him at the pool before we left. Then traffic was awful and we couldn't get out of the parking lot. We finally made it to the place we had picked for lunch, ordered what we had already decided on, and had a short wait for our food. My Dexcom showed I was slightly headed down, which I expected and was what I wanted. Just as our food arrived, the shakiness started, followed by the sweating. Jason suggested I test, because Dex was indicating I was in the 70s. I shouldn't be feeling low. Test...39. Wow, no wonder my vision was shaky. I realized I was babbling. I tend to do that when I'm nervous. We decided if I'm talking then I must be ok. Right?

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Saturday, May 21, 2016

Tips and Tricks - 2016 Diabetes Blog Week Day 5

Due to the fact that the school year is almost over and I fell asleep on the couch Thursday night, Friday's post didn't get written as scheduled. Here it is a day late.

Friday's prompt: Let's round out the week by sharing our best diabetes tips and diabetes tricks. From how you organize supplies to how you manage gear on the go/vacation (beach, or skiing, or whatever). From how you keep track of prescription numbers to how you remember to get your orders refilled. How about any “unconventional” diabetes practices, or ways to make diabetes work for YOU (not necessarily how the doctors say to do it!). There's always something we can learn from each other. (Remember though, please no medical advice or dangerous suggestions.)

We've only been dealing with type 1 diabetes in our house for a little under 4 years, but there are some things that I've done to help keep the chaos under at least a little bit of control. Now that there are 3 of us with t1d in the house, it has become even more important. The rest of the house is a mess, but the d supplies are in order.

1) Prescriptions. I think I've finally gotten all of our prescriptions on the same refill cycle. That means just one trip to the pharmacy every 90 days. It took a while to get them all synced up. The CVS app makes it easy to order refills, too.

2) Labels and Sharpies. I label pretty much everything. The Dexcom sensor packages have the initial of the person and the date it was inserted. Plastic organizers contain supplies and snacks, all labeled. Here are a couple of examples.

3) Opsite Flexifix and Skintac. These are essential for keeping Dexcom sensors on for as long as possible. 

4) Portable sharps container. We use old prescription bottles. Works great, secure and compact. 

5) Snacks/low treatments. We have drawers of snacks that are 15-ish grams of carbs or less. I buy packages of crackers and such when the are on sale. Same with candy to use as low treatments. None of us really prefer Skittles, Smarties, and such just to eat so they work well for lows. No temptation just to eat them. I make sure we have a variety of different carb counts , labeled of course, for different situations. 

6) Kitchen "control center." This recycled wine rack holds all of our daily use supplies. Each of us has a spot for our meters and insulin pens. There is a box of each color of pen needle, as well as a box for trash. To the side is a bottle for sharps. 

7) We also have well-stocked bags that I try to double check every Sunday night, adding insulin pens and pen needles, as well as changing the lancets in all meter cases. Juice, a meter, and pen/pen needles live in our bedroom too. Diabetes supplies are everywhere!

8) Insulin. The extra fridge, which was originally purchased when our boys were just entering the teen years, is now pretty much the insulin fridge. It holds the 90 day supply for each of us. The main fridge has the boxes we are currently using.

There ya go! Those are my tips for organizing 3 people with t1d in the same house. Being organized helps us get able to KDA every say.

Read other tips and tricks here.

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Thursday, May 19, 2016

The Healthcare Experience - 2016 Diabetes Blog Week Day 4

Day 4 prompt: Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What's your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

I'm actually pretty happy with my current doctor. He is kind, compassionate, and knowledgeable. I've only had one visit with him, but my husband has been going to him for several years. 

Our insurance through our employer is very expensive  (isn't everyone's?) but the coverage is pretty decent. We haven't yet had to fight for anything we need. We haven't started exploring pumps yet, but I don't think we'll have issues there either.

My biggest issue has been with misdiagnosis. Jason was initially misdiagnosed as type 2 and spent several years frustrated and defeated. Seth was initially diagnosed with a mono-like virus and ended up in ICU in DKA. And even though I was armed with specific information, I was initially misdiagnosed by the clinic PA. He was condescending and closed-minded. I presented him with data (sudden onset of symptoms, blood sugar levels, rapid weight loss, etc) and he dismissed it all. He told me flat out there is no way I have type 1. At my age, it can only be type 2. "You would have known before now." I vowed when I heard those words that I would a) not listen to anything else he said, and b) never see him again. I endured the rest of the visit as best I could. Jason is a healthcare professional, and noted several things this guy did wrong, including the way he listened to my heart and lungs. He was unprofessional and lazy in his exam. He wrote me off as a fat, lazy type 2. Please know that is not at all how I feel about people with type 2; that was the vibe he was giving off. He gave me no guidance on diet or exercise, simply said, "Take this pill and come back in a month." I was livid! If this is how people with type 2 are treated by the medical professionals, then no wonder there is such a problem!  I felt dehumanized and worthless, and I knew he was wrong. How awful must it be for people with type 2 that encounter this type of "professional." My heart just aches for them. I deserved better, and I got it. They deserve better, and I'm so afraid many don't get what they truly need. Compassion, kindness, knowledge, and empowerment. Those are the things that people with all types of diabetes need in order to KDA.

To read how others are responding to this prompt, click here

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